Palliative Care learnings with University of Philippines Diliman

Happy to share my experience with the University of Philippines Diliman (dated on 11th March 2018) on establishing Palliative Care during my time at Pita Kuning.

One day, I was contacted by someone who works for Dompet Dhuafa Republica . Apparently they had read and learn through all my series of blog post on Tyas Social Project (read : English version or Bahasa Indonesia version). Tyas Social Project is about the process on how we implement Pita Kuning new strategy service focuses on Psycho-Social activities to meet the needs of Palliative Care for children with cancer from underprivileged families. It became a reference for their acquaintance from University of Philippines about Palliative Care.

Palliative care is still very new for some so the understanding and also how to implement into an actual practice are very rare as it is a unique story to tell.

Who would’ve thought that someone whom I have completely never met could even given me as a reference of knowledge as big as Dompet Dhuafa.

It is a beautiful feeling when we could be a service for those who really needs. In this case, especially to support the prevention and the counteract measures of childhood cancer, palliative care needs and any social initiatives. In Indonesia, in the Philippines, in Asia and anywhere around the world.

I remember the last question given to me was, are there anything I would want to change now that I can see the overall results ?

I pause myself to think for a moment and said, no. There are none.

I look to see a small smile that continue with a question, aren’t there anything you would like to do better ?

Honestly, no, I said to them.

There are no perfect benchmark to what is best in practice implementing any social impact model from my point of view. Every story is unique and over the course of the journey, with all the conditions and situations we had to overcome, I believe we have done our best. I wouldn’t change anything.

On the other hand, I feel it is important to develop our own journal throughout the journey we have experienced.

Especially when our experience are unique and what we have done is new. 

Understand that it is very important to never stop building our own expertise. Sharing to people not only who we know but also who we should know, building a network and digital footprints of our own.

Having to understand that one day, these writing, these stories in a form of strategic management journals would be useful to others.

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

Tyas Social Project – Time to let go

English Version

#TyasSocialProject #9

At last it is time for me to leave.

Since October 2015 I have given my time, professionally to work as the role of Yayasan Pita Kuning Anak Indonesia Chairman. One very rare opportunity that gave me great life lesson, personally and professionally.

A learning process that I would never forget. I am truly grateful with the opportunity and those who has accept me with all my shortcoming as well as my advantages.

I always try to hold on to what I believe, as I understand that we can never forget who we are and why we are here today. My duty to make the changes needed for this foundation had been succeeded. All points of issues that needed to solve was completed. It is very important for me to share the changes that has happened. As it will become an understanding that my service is done.

Now, Pita Kuning has,

  1. Owns a a new strategy of service positioned or focuses on psycho-social services to meet the needs of palliative care with new re-define purpose, vision and mission.
  2. A new structure organisation that is divided by hired worker and skilled volunteer work programs, clear division of work, work process, work protocol/SOP , hired work contract/work commitment so the workforce dan volunteering becomes sustainable, recorded and measured.
  3. Have good relationship or re-gain relationship with stakeholders with an ongoing consistent community management.
  4. Own a calculative financial projection that separate operational cost and distribution of support for each child with a monthly target by 30-50 child, within Jakarta Tangerang Bekasi (JaTaBek).
  5. Systematic recorded data of distribution support and also the progress of each child and their family regularly updated on our website through Diary Anak Pita Kuning (the Diary of Pita Kuning children).

Essentially, Pita Kuning now has a guideline and tool work to support their work process through recorded and well trained individual member of PIta Kuning though  knowledge management.

 Manajemen Pengetahuan : the process of creating, sharing, using and managing the knowledge and information of an organisation. It refers to a multidisciplinary approach to achieving organisational objectives by making the best use of knowledge. Knowledge management efforts typically focus on organisational objectives such as improved performance, competitive advantageinnovation, the sharing of lessons learned, integration and continuous improvement of the organisation.[7] These efforts overlap with organisational learning and may be distinguished from that by a greater focus on the management of knowledge as a strategic asset and on encouraging the sharing of knowledge.[2][8] KM is an enabler of organisational learning.

All learnings from the distribution support for each child, the knowledge, the experience, the background reason why can or cannot become a working protocol. To achieved the productivity and impact we wanted to achieved operationally becomes a discipline and work guide based on real experience.

The discipline. The requirements. The fundamentals. The reason behind. The price, the notion, the respect. The quality. Becomes the fundamental reason to go in, make changes, and level up. It is the true asset to whatever form of social impact model Pita Kuning wants to reach. That before, was never owned.

To me, the most important goal was to give this foundation a strong base line align with the search to be sustainable. I hope, from the knowledge management that now has been recorded, and trained for 2,5 years I have been at service becomes a strong foundation, influenced by the discipline from each individual within the organisation to move forward. To know where we are, and to have a benchmark of where we are and where we should be, is achieved.

For the continuance to seek the best social impact model will never end. As again Ramya Prajna, from ThinkWeb said, “it is not enough to just care”. ThinkWeb has been very supportive help building our digital platforms including helping and assisting the formulation and knowledge of what is Sosial Impact Model.

To me, being a leader is not only a decision but more so as a responsibility.

I will continue my duty as a professional, crafting my work, chasing dreams and aim a meaningful purpose.

Thank you so much for Pita Kuning and friends that has helped, open their doors to work together during my time at Pita Kuning.

Friends of foundations, Health Departments of the Republic of Indonesia, Hospitals, Doctors, The Experts, Communities, Donors, but most truly, my dear dearest children of Pita Kuning and family that have given their trust and faith to us.

Special thanks to Pita Kuning team,  hired paid and volunteers, I truly thank you. What we have achieved together will be your masterpiece and that is all your hard work. You make me proud everyday. I hope I have given as much learning, guidance and be a model of compassion for each and everyone of you.

I hope we could remain friends.

To the founders, councils of Pita Kuning, thank you for the opportunity. I will always be grateful for this opportunity.

Life is truly beautiful to have the opportunity to serve those in need. It was an honour, a privileged and with great pleasure to serve Pita Kuning . Thank you, I’ll see you next time.

#sayaPitaKuning ,always do good together.

Much love and warm wishes,

Tyas Handayani Wongsoyudo.

 

 

Those who are interested to learn more about this journey click here for Bahasa Indonesia or English.

Read also : Tyas Digital Project and Tyas e-Commerce Project

Tyas is now Partner at Bangwin Consulting and Trainer on Digital and Social Media, Freelancer, Writer. For project enquiries : tyas@bangwinconsulting.com

Tyas Social Project – Going Palliative

English Version

#TyasSocialProject #8

Pita Kuning going Palliative Care, focuses on Psycho-Social based activities.

After 3 months trial practices from October to December 2016, also show casing pur new service to media and donors on January 2017 we tried to review on the learnings we have up til now.

Information, knowledge, lessons, each case we found have let us fill in and also improve the structure of our service formulation.

However we have still a lot to learn, absolutely, nevertheless there are concrete cause and effect all in written. To find solutions of problems and how to handle them, what to do, why do we need protocols and operational supporting activities also division of support will lead to so many things, including the operational cost needed.

Again, knowledge management. How it is important for a single method taken from the learnings of 5 chosen child, within 3 months assisting activities and distribution fund supports. My hope, within time it will improve and progress with the same objective, to improve the quality of life of children with cancer and their family.

After that 3 months learning, we then know and understand more expecially on children with cancer, nursing and care taking. Based on KPKN childhood cancer countermeasures,

we have found and finally understood that all these times what we have done through our activities are actually building efforts and how important palliative care was. The understanding back then was not yet been educated. And the comprehension of what is Palliative Care is also misunderstood.

Palliative Care is not only for cancer patient that are in later stage but needed right from the start. Palliative Care cannot be replaced by any medical treatment but as an aspect that completes each other, even needed after the patient is passed away for the family that has impacted.

Palliative Care is a series of efforts in trying to reduce the pain, trying to help accept the fact of having cancer with patient and their family, trying to help overcome the impact made by the disease in the end to improve the quality of life for the child with cancer and their family.

To improve the quality of life for children with cancer and their family as our main goal meaning, we aim for family productivity. When a member of the family is sick or could not perform normally it usually impact the the balance of the family’s daily routine. If many family are defected their ability to perform in their daily lives, hence the quality of life a community or a region as result there will be in a limp. Trying to seek the best solution comes from a bigger dream. We want to be a part of a better Indonesia.

For us finding the alignment of our main purpose and our background history as well as our need to grow was eventually taken from the 3 months trial activities. It was indeed a relief.

Of course by going palliative there will be some adjustments needed for the organisation. But wherever we are, working anywhere, there are no guarantee on what changes would might had happen, at anytime. For me, the most important as I am still at my service, is the main purpose why I am here in the first place. And therefore the main objective has not changed. Still within and align with the promise, the agreement for this organisation to have a strong platform, to become better and the have the opportunity to help more children with cancer in Indonesia.

Pandji Pragiwaksono, Founder and Council of Pita Kuning once said, “we, still have many opportunities and have the ability to be flexible in our own lives. But, the children we are helping do not. Always give space to grow within this organisation. Solely and purposely for the children.”

 

 

For Pita Kuning we still need to do so many things in order to get the ideal Palliative Care based services. Through our skills and our capacity.

We then started to joint partnership and try to affiliate with a lot of parties so that we can rise above, be strong and steady to give the best that we can do of each year’s goals.

In managing our service combine both on volunteering and hired workers, the supporting cost we need also would be an important aspect.

We also need to partner and educate the awareness those who wants to join together for the same cause, helping children with cancer. My hope that Pita Kuning could be a part of the larger ecosystem of childhood cancer countermeasures in Indonesia. and also can be able to partner with anyone who share the same mission.

Currently, I am proud that Pita Kuning has started to collaborate with other foundations that has the same understanding on the importance of palliative care.

Rachel House Indonesia and Rumah Harapan Valencia are 2 foundation that has the same mission as Pita Kuning.

Rachel House Indonesia mission is to provide palliative care for children living with life-limiting conditions, allowing them to live with joy and dignity in a non-discriminatory, safe and loving environment. Rachel House helps children in Indonesia with AIDS and Cancer from underprivileged families through medical support that was referred by doctors. It was a fortunate coincidence, that the new CEO of Rachel House, mba Kartika Kurnisari is our dear friend from Putera Sampoerna Foundation.

Hand in hand we work together to help children with cancer. Now together with Rachel House from the medical side and Pita Kuning from the psycho-social side. Starting from early assessment up til bereavement we support palliative care needs for each of our child with cancer and their family. We also have amonthly monitoring meetings to review progress and learn the needs ultimately to have a good management case system and could help each other fill in the gap in support to help those in our care, at Jabodetabek.

As with Rumah Harapan Valencia we agreed to take care together those child with cancer within the pyscho-social activities. Mba Silly invited us to continue our support to other cities in Indonesia. Pray to make that happen.

Small Note : In the social activist world, it is never impossible to work together. What we are doing is to help those in needs. Whoever is lacking will be supported by others. And of course the spirit of competition will never die. Ramya Prajna, a social impact enthusiast and educator says, competition within the social initiative world will push productivity and therefore makes the industry becomes lively and more exciting.

To manage well, we also started to learn on the true role of Social Worker. We met with an expert of Social Worker, mba Nurul Eka Hermawan . Mba Eka, as she is called, as work and a consultant for the Social Department and International institution for many years. Through her experience and guidance we started to recruit Social Worker to be our case manager for our children we have at Pita Kuning. They also become the bridge to each multidiscipline parties of Palliative Care, according to the needs of each child. They are also the coordinator of volunteers as each group of volunteers support each appointed child with cancer and their family in a group of 3-5 by weekly assisting programs.

Pita Kuning team with Mba Nurul Eka (expert on Social Worker) and mba Ita D Azly (Family Psychologist)

Currently, Pita Kuning has 3 Social Worker that are dedicated to be the coordinator to volunteers and communities. They are true millennials. Isn’t that incredible ?

I do hope, each child gets a continuance story through their case management that can be shared. To be used as a monitoring learning or a proof of concept for us every case always has a goal objective to reach both psycho-socially.

And in the end, I truly believe the impact of what we do will make a full circle of hope for the sustainability of Pita Kuning as part of the childhood cancer countermeasures ecosystem. All for the best in doing good together.

And that is why it is time for me to let go.

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

Tyas Social Project – The Task Force

English Version

#TyasSocialProject #7

Who are the Task Force of Pita Kuning Psycho-Sosial Formulation

Tyas Amalia Yahya

Tyas has the same name as me. Tyas had to changed her name into Lia when eventually mix-ups became issues during executions with any external parties. Hahahahah sorry bout that. Tyas is one of many volunteers that fell in love with Pita Kuning. She is so committed to help children with cancer for more than 6 years since I came in on October 2015. If today is 2018, Tyas has been with Pita Kuning for 9 whole years. An amazing time and contribution. With Pita Kuning, Tyas met with so many people and experience many things. Witness what has happen during the years, through many milestones, and keep founding herself wanting to contribute more to Pita Kuning.

A smart lady graduated from FISIP University of Indonesia, majoring in Social Welfare, is one of the people I knew way back in the days before my time as chairman for Pita Kuning. Social Welfare. those who graduated become a Social Worker. A role that is so important to the social institutions and foundations in Indonesia but so rare to be understood or lacking awareness about it.

As Lia apparently has gain many knowledge, she became very much valuable in the development of Pita Kuning moving forward and become better. her contribution through her direct experience becomes our  railway or ring fence and structure to a better management system.

Ita D Azly

My introduction in meeting mba Ita was truly a calming experience. Finding the right expert to help us build a new system that supports childhood cancer was at all not easy. At this point, I have met, chat, try to get acquainted with many psychologist. Soooooo many. With psychologist from many field of background and different experience. But it took a while for then we gain learnings that was so useful in a very short time.

Mba Ita is a family psychologist that as many experience handling difficult cases of violence and deviate. Besides that, cases that comes by the impact of disease that is difficult to cure like AIDS, Cancer and others are some within her interest.

Her contribution in building the new services for Pita Kuning cannot be taken lightly. Driven by her passion and good intention to help from the start, like our vision and mission to the formulation needed that has the right composition to fit in with the needs of childhood cancer.

Through mba Ita’s help we have learn a lot on what is psycho-social, how to asses and evaluate a case of childhood cancer and their family, how we put it all the knowledge together within the work process of what we have, a group of hired and volunteer workers.

It doesn’t stop there, her role and presence also gave a lot of values in knowledge that gave us more substance in briefing and trainings. Mba Ita is a true hero for Pita Kuning.

Noviana Eva

I have known Eva from my previously at Putera Sampoerna Foundation. I recruited her as Digital Community Officer for the division I lead Digital and Social Media, a part of Centralised Marketing & Communication. Eva is a person who is always easy going, sharp and has a positive spirit. So I asked her to join in the base of where this organisation is going. Community Partnerships as well as to support Marketing and Communication that would be beneficial for us as well.

In the beginning of Eva contributions of developing the service product formula is to seek strategic partnerships that would give benefits to our services and also the formulation of assistance activities. Eva would lead the skilled task force with the champions in social driven activities, communities and volunteering, consist of, Muhammad Fikri – Head of Community, Bukalapak, Yudha Adyaksa – Chairman of Pramuka Youth (Indonesian Youth Scout), Yosea Kurnianto – Founder Youth ESN, Hety A. Nurcahyarini – Activist in Education, Indonesia Mengajar and more. Gathering interesting insights and inputs from many peoples that were involved in building social initiatives through out Indonesia. As we understood our strength at Pita Kuning that was built upon a group of young volunteers right from the start.

Eva also composed a volunteering bible to support all the activities in Pita Kuning in objective of making volunteering sustainable within the work process.

Ning Mahayu

Ning is someone who gain knowledge from Putera Sampoerna Foundation for 6 years. Because of that she has many experience building social initiatives, programs and activities. She was a part of the team when the social initiatives of Sampoerna Academy by the education pillar, Sahabat Wanita by the Women empowerment pillar, Koperasi Siswa Bangsa or a union cooperatives of students as well as a part of PSF’s Cutural Development. I have worked at the same office but I would admit, I have never work side by side, together in a project with her. But personally, as someone show likes to observe, I have quite fond and witness her potential from a far.

To seek the head of services for Pita Kuning I immediately remember Ning. Ning has everything we need. 6 years of experience in building social programs, accustom of working by professional structure and loves the social institution world. Perfect.  her contributions were huge in building the services and also the operational aspect of Pita Kuning til now.

Among many strengths that Ning have, I feel, Ning’s core strength was having the ability to learn new things completely and in depth. She relies on the actual “institution of information” as the foundation and instrument to develop the formulation of a product services. her clarity to justify from all sides and have the heart to see makes her analysis also producing solutions for humanity. Up for any challenge , Ning has the potential to be a good leader.

Mustika Kusumaningtyas

Tika is one of the last person I’ve asked to join in this organisation. I have known her from back in the days we where in the same company at Multiply Indonesia, one of e-commerce pioneer in Indonesia during that time.

I admire her when observing her role as Lead Operational Customer Service. Smart, sharp, data driven, rigorous, and have a sense of strong management skills for both operasional and process flow. That is why I approaced Tika. Later she agreed to be vice chair for Pita Kuning.

Tika is passionate in healthcare for children. You can rely on Tika to do anything finance and operational driven. her contribution in building this formuation for Pita Kuning service is huge as she was the one who connect it all together, always accomplished to find operational matters needed to taken care of and always care to pay attention to each process and each issues.

Click on each of their names and you can learn more about them.

Go back to, the formulation story. Or,

Go to the next story, Going Palliative Care.

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

Tyas Social Project – the formulation

English version

#TyasSocialProject #6

How did we formulate Pita Kuning new product of service cornerstone.

Making changes needed in Pita Kuning, producing a new machine for Pita Kuning, besides the re-organisation needs we need a formula for the new product service. Product hear means Pita Kuning main service activities. The foundation for Pita Kuning ecosystem. The main purpose and why we are here today.

It is important to review the form of what is best suited hence give real benefits for our children with cancer and their parents but also if possible becomes one long lasting productivity align with the type of organisation and also our operating systems.

That is why in terms making the changes needed or building foundation, I made an analogy as we are developing a new machine.

In the early stage we would raise questions like, what is the right way to give support  our children. What is not yet available yet very much needed for children with cancer from underprivileged families.

The other question are, how can the right services give benefits to those who needs help ?

In the early assessment and recommendation which was understood both the importance and reason behind the problems including who are the stakeholders and therefore direct the trajectory of this Foundation.

As we enter an early phase we understood that we need to develop many joint cooperation. The process of getting to know and working together either way as temporary or long run has to be accepted and then could avoid an wrong expectations in building ones formula of servicing activities later on.

To me, what was needed,

  • A framework of a learning process and early research,
  • An activity that could build some sort of prototype or maybe “proof of concept”
  • And an activity that could produce a service through a work of process.

I would admit it will take a long journey understanding where we are now and what have Pita Kuning done in the past.

We have done quite a lot. At that time what we have done was a concept by the name of Kliniko-Psycho-Social.  A series of servicing activities that supports activities of clinical, medical, psychological and social.

What was lacking here ? Are there any obstacles in operating it? To understand completely meant to review to the core as if we were to opening a new page. Us, the new people were getting an opportunity to learn from the start.

But what about all that has happened and with the servicing activities before ? The fact is, there are no data. No written knowledge as those experience was with those who had the experience. When that person no longer with the organisation, all the effort and all the information vaporised with them. And therefore it takes a lot of effort for the new guys to learn let alone to continue the journey.

Understanding the fundamental of these services are based on those trust given based on the facts what has sustain in the lives of this organisation with its stakeholders.

So where do we start ?

There are a few important aspects in the process of building a service. I divide them into 2 parts of the framework :

First, a base formulation of a framework that we can later on needed to fill according to the learnings and needs we gathered in the field.

And,

Secondly, people who are experts in their fields. A Task Force for Pita Kuning services program.

The Formulation Service Pita Kuning

To me, the understanding for formulation becomes crucial for an organisation driven by a social or  humanitarian by volunteers because of the health aspect, meaning what we support is childhood cancer. Therefore the key is knowledge management. The objective are,

  • Structured and systematic,
  • Follow a purpose as based,
  • Form in composition and aspects,
  • Able to see the progress and each of the changes.
  • Taken from what we learn in the field based on patient habits and their families that also manifest by the learnings as we gathered in the field.
  • Based on varied of situation and condition we have at Pita Kuning.
  • Regularly monitored and measured each time we progressed.

I would give a parable from point A as the base structure. Describe as a framework, ideas and early assumptions. And point Z is the ideal form. That would give a solution life cycle that supports each other.

As an example, point A can totally be changed into point C but the goal as to be a sustainable media to support Indonesian children with cancer from underprivileged families can never be changed.

The end goal is sustainability of course. Pita Kuning wants to be able to take part on childhood cancer countermeasures in Indonesia, especially for those who really needs help.

How to do all the list above ? The answer was, knowledge management.

As we progress and learn, I become aware that many findings became something that we need to change on our service. I only hoped, who ever is the future leader could follow the discipline in recording methods that we have started here.

Knowledge management is essentially important for an organisation especially when the fast changes happens as the same spirit as the people who wants to support us.

The new Pita Kuning Philosophy

  • The Ribbon symbolises our commitment in advocating our thrusts, and in achieving sustainability in our operations.
  • The color Yellow represents the positive energy and passion as we demonstrate who we are, what we do, and why we do it as an organisation.
  • The name Pita Kuning embodies our pledge to spread awareness on and aid children with cancer, as we wholeheartedly perform our duties to provide sustainable programs with our partners that share the same goal, which is to improve the quality life of children with cancer and their families.

Lets continue.

In August , the formulation structure was like this :

In my head, my structure of thinking, I divided into a few stages :

  • First stage, a form of assisting method with education as supporting base activities.
  • Second stage, a form of assisting method for child with cancer who needs help (underprivileged background)
  • Third stage, an activity of giving funding.

All three stages are activities are an entity on its own. However each of them would benefits the formulation lifecycle we are aiming to build.

When developing a product services, in our case for social cause, we need to figure out how or what should become the basic form from an assisting model activities. For me, at that time, I would think it would be best to be

  • modular, because of their modular construction these are easily replaced, enabling quick refurbishment and turn round.
  • has an educational base activities each modules. Wether be it to educate the medical aspect or any other knowledge supporting the assisting activities for the child and family that supports the child needs.

However, what we found later on was the educational aspects seeks more than that. From the assisting formulation sides, we divided into 2 parts. A division to manage the volunteer and a division to manage the support knowledge needed for this assisting activities. How and what do we need for this ?

  • And on the distribution of support fund, the formula needs to have a measurable and clear aspects on its own.

As we learn from managing the process, in order to achieve that life cycle aspect that we want.

So since  2017, the development of our servicing product becomes this, a palliative care services focuses on providing pyscho-social benefits.

Ho we proceed,

What happens between August 2016 to the end of 2016 ?

After we have agreed on the formulation structure, we then have to figure out how to fill in with exercising some trial activities. We had 2 months to prepared everything up to a point where we need to choose 5 candidates for us to help.

Why within 2 months, we aim to share what we have learn to external parties by a certain date. Based on the plan, there were some steps to conquer in objective to build a new machine prototype, the 1st draft formulation of our product services.

By October 2016, we started to learn from our assisting activities and distribution support of funds for 3 months til December. Our hope, from all the learnings and findings gave us a much more clearer picture of what does it takes or how to describe “tepat manfaat” or the fight support/benefits, specialising in childhood cancer for underprivileged family.

We then also open ourselves to meet with other foundations and institutions or communities that has some relation with childhood cancer. We tried our best to approach and open ourselves to inputs and also incidents happened in the past, before our time of course. After all, we are all new to this. It doesn’t matter for us because we basically we all have a commonality, a huge desire to learn.

By the end of 2016, the next step after exercising the trial prototype, we presented our ide, this new concept, to the ourside world. Through media media luncheon show casing and sharing our stories. On the same day, we also gathered donors that have work with us also to share what we have done and also to introduce the new team.

In the end, this is an experiment of how media and donors see us with this new concept and how the potentials in the future in humanitarian social driven cause. We also knew it is important to share progress as we are fully aware of the responsibility to the public and those who have supported us.

Who is us ?

As I begin to carry on change management, I have met with a lot of people that has the same pathways with us, with our mission, people who have the same mission with us. We eventually met with people that Pita Kuning needs right now, that fits in with us, people who wants to help also people who wants to join.

Before i share more about these people, how it went from the beginning, I want to share 2 videos of Jack Ma that I felt have the same thinking as I do.

Similar in two ways.

First, search for people who is smarter than you.

A similar understanding with Jack Ma was about the misconception about being a leader that does not mean you have to know everything. I do not have any background in health nor do i have any experience in childhood cancer. I am not an expert in building business and I am aware of that. But I was trusted with this mission based on my experience, my ability, my skill set, to build a fundamental ground works that this organisation needs.

Why ? Because,

In search for the best in the field might be easy. It was necessary meeting the needs of change management at Pita Kuning. If we get it right, it would be an advantage for Pita Kuning. But to search for right people considering our resource and conditions we have,  was a challenge on its own. Usually, those who has the both the capacity and the leaderships skills has its own challenge.  And that leads to the point no 2.

Hal kedua, search the right people.

Pita Kuning is not for everyone. The key to finding the right candidate has to fit in with the needs with want for Pita Kuning .

  1. They have to have a capacity in the field, meaning experience, skills, knowledge to build Pita Kuning, and also accustomed to a work in a structured form and manner.
  2. Have a spirit of start-up, a sense of entrepreneurship. This means we a cannot afford for people who only care for doing their part but also help and support other parts when needed. Everybody needs to be able to do everything at the same time.
  3. Compassionate is a must. Having the heart who wants to help others. Pita Kuning is sosial philanthropy. What is means is the work is mainly to help other people. This person MUST have a liking to help other people. That person has to have that sense of understanding, what is reality and a great acceptance of certain condition that are very different.

These three aspect are not only for volunteers but also hired worker and anyone who wants to join us. We are on a mission to search the right candidate for the job.

“Pita Kuning embodies our pledge to spread awareness on and aid children with cancer, as we wholeheartedly perform our duties to provide sustainable programs with our partners that share the same goal”

Nevertheless, those who has leaderships quality in them are not only bright but has their own idealism. Has the experience, and not afraid to speak out. Critical and with their own character.

Those who has their own determination, expectations and style of work. Of course there will be some sort of “ego” friction, one common thing that would happened. But one thing that made be so proud was the fact that each and everyone one for those whom I have asked to join, I shared Pita Kuning story, then eventually joined and witness the activities would have a rather difficulty in letting go Pita Kuning.  Those who understood what Pita Kuning represent would loved and wanting more to contribute.

I would make an example like playing ball. Just like any other organisation we keep the ball going, together, from one part to another, and so it goes on. Here, at Pita Kuning, everytime I would see that ball being passed, the person who is handling the ball would want to take good care of it. That is how I’d admired Pita Kuning team, again, without any exception. I am at my most admiration and a privilege to be a part of them. Incredible people.

They could of course choose their paths another way, but they chose to stay or help in any way they can. Whatever it takes.

And how about millennials ? Most of the team members of this organisation are a millennial so what do i have to say based on my experience with them, and you may quote me on this,

“give them a great cause and the opportunity to have a huge responsibility. give them the power”

In particular to those who has supported building the new formulation of Pita Kuning, some has great contribution they have given. Who are they ? Go to click The Task Force.

Next, Going Palliative Care.

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

Tyas Social Project – The beginning of change

English version

#TyasSocialProject #5

What happen when making a change for Pita Kuning.

After we have agreed on the findings and direction in December 2015, the options on “re-established” Pita Kuning is the next planning to do.

The next plan were, to develop a description or a reference action plan that we are going to do. What do we need to do the changes we need to do for the Pita Kuning organisation.

On each planning I always wanted to have a pattern or some sort of guidelines that I could use to relook or look back, to see where we are. The guidelines is essentially my framework to re-look and adjust according to what happens later. What will happen in the field or the learnings throughout the journey.

So I can look again, gathering all that has happened and go thru step by step all the details that should’ve happen. After all it is a plan. Execution is another thing. Planning also is a part of what you envision could be executed.

Tips. Planning and executions. 2 very different activity yet each has to stick together. Connect with each other. Answers one another. We adjust, adapt, re-arrange the plan just to fit in the main goal, the condition, the findings we received along the way. Putting pieces together, building one thing in to another, just like playing puzzles. All to make something a sense of meaning.

At that time, the objective of the plan had only 2 goals. Better management and rejuvenate of the product services.

Those are the most immediate things that we need to discuss together.

  1. How to build a new engine
  2. How to show the engine works
  3. Launch the engine.

On the early discussions between planning and executions, we always, me and the leaders imagine the importance of community based partnerships.

A unity of strength and depend with each others strength towards the same goal, helping Indonesian children with cancer. What a wonderful world it is when we all come together and focus on the bigger picture.

Aside from that, based on the understanding we could never be here forever, a healthy rotation, giving new opportunities to new people who comes with fresh new ideas  and continue the journey with all their compassion.

One of the promise I shared was this journey that we would embark will be seen compelling and for those who are involve, be it hired worker or volunteer can inspire each other. And therefore will not be a burden to avoid the saying of “a life time helper”.

That was the plan. So what actually happened ?

 Paving the way.

Ploughing if I may say. From all my findings and conditions that was agreed with the shortcoming and weaknesses of Pita Kuning, I need to made some activities that was about opening doors or a pathway to understand.

Orangtua Pasien Kanker Anak RSKD, 21 Juli 2016

Pita Kuning, Love Pink, CISC

YOAI, Yayasan Kanker Anak Pertama di Indonesia

From getting to know and establishing relationships, I have got meaningful insights. Findings of what is lacking that needed to be filled by us, Pita Kuning. Given by parents of the child with cancer as well as by other foundation friends. My approach was personal and with a kinship way of mannerism. It might seems humble and naive but for me as a human being, sometimes what we need was something simple.

And I feel, these approach was what made Pita Kuning accomplished and gain that relationship. Wether with new or old, in the end open our chances for people to get to know us, the real Pita Kuning, who we actually are. We, as in the people. People connect with people. It is important for people to relate with us. It is a necessary approach hence we are an organisation that supports humanity. No matter how ugly or you get slam on the door honestly for me it is ok. Someone needs to do it, might as well be me. I remember my father once said “it takes a bigger person to have a bigger heart Tyas”. Smile.

Besides that it is like playing legos or puzzles when a part of the information existed, there are still a lot to be filled, and yet the process of changes needs to be executed and with the exact form of organisation clearly is yet to be identified. What I do have is a vision. A vision of what I would like this foundation to be. So I stick to that. Focus on that.

Just like any organisation, we, the board of management and I understood clearly that we are determine about the changes that we have to make. That is to make the best of what we feel could support this foundation in the long run. We see the potential of what this organisation can do. So the planning of this should be as ideal as how an actual business plan should be.

However. At that time. There are so many loop holes that needs to be filled in in order to develop an actual ideal business plan. We were not yet normal. But what is normal anyway nowadays.

Nevertheless, we agreed on the fact that those holes are somewhat cavity or errors and weaknesses, shortcomings and mistakes. That doesn’t matter now, however. The most important for me is that we all agreed, identified and work our way to change. So for me there is no way than not to go forward. Will just need to figure out somehow, so just…. Go.

Change Management.

Essentially the next action is change management. Reorganisation. Our internal context of the organisation. For all the reasons I have told earlier, what we need to do, what to expect.

On this case, to figure who we are might be easier but to fit with the needs currently needed in Indonesia might be different.

Change management. is a collective term for all approaches to preparing and supporting individuals, team, and organisation in making organisational change. It includes methods that redirect or redefine the use of resources, work process, budget allocations, or other modes of operation that significantly change a company or organisation.

Some people understand the importance of change management. Some feel it is unnecessary.

Well it is entirely up to the who is leading the change. Before entering Pita Kuning, I too had experience change management in my previous work place. So I knew how it felt to be the old guys and the new guy in this matter. It’s never easy. There are no easy way to do it. You just try you best but you cannot make everybody happy. And then again, it is not your job too. At this point the job is a smooth transition as possible.

Maintain the questions coming in to you. That’s a good thing. For those who do otherwise or might I say “messing up” don’t even bother. They are monkeys and they are not your circus. I said in my head.

1st list to do is series of announcements and open discussions to cater questions and have time to explain also moderate the conversation happening in a way that you want the narration to be.

So throughout January til June I announced and take efforts in meeting with all sides of the stakeholders.

The announcements are basically, why need to change, what to do and how to do it.

No matter how this is a change. It doesn’t matter how small it is or what size of the organisation. And, for any organisation there is a need and responsibility to announce the changes we are heading and agreed together for the main purpose. That means together we all understood and ready to work together for the betterment of this foundation.

Stakeholders Pita Kuning was consist of so many counterparts, first and foremost our child with cancer and their family, the donator, volunteers, experts on childhood cancer, like doctors, nurses, hospitals, psychologist other foundation and communities that carries the same missions including other parties involves and joint cooperation with Pita Kuning, such as children’s driven community, education and so on.

How easy it was ?

From January to April.

  • As much as possible recruitment internal team identifying their skill and willingness to move together to the direction that we want to go. Agreed to be volunteering skills like IT, HRD, then also in the lookout for candidates of hired workers that has not only the experience but also the heart to do social related work.
  • Finding partners that could support the new formulation of service. Let it be from a skill set professionals such as doctors, psychologist, leaders in volunteering area who has established their own independent social initiatives organisation, meet ups with children and education communities. Gathering knowledge and information.
  • Identifying Pita Kuning owned narratives and initial content for transitions. And also announcing on ready medium like our website and social media.
  • Take the effort to meet and engage with each stakeholders.
  • Transitions on legal and also finance.

April May

As things beocmes more clearer, one of the founders, Pandji Pragiwaksono and I met with the Foundation’s trustee Pakde Indro Warkop who was acting as the controller for Pita Kuning. The meeting and discussions went nonstop for full 2 hours and ended with an Amen by him of all the planning and of course take note of his well wishes.

Grand Indonesia, April 2016

We begin hiring in May 2016. And started many activities that was very different from before. And that is when #sayaPitaKuning started. #sayaPitaKuning means I am Pita Kuning.

#sayaPitaKuning is one subtle way, to fix and grow all together a sense of ownership towards this organisation. As this is a 8 year old organisation, there are many supporters that never left all of our existing channels in social media. However it was long never any updates. To me this was very interesting. There was a chance that people wanted to still be a part of Pita Kuning.

#sayaPita Kuning started from sharing those who are inside this organisation to those who are new. The intention was to refresh the memories of the supporters that was online of the purpose and what we have done, as we also continue later becomes a bridge to the new things we would like later to share.

To awaken the old Pita Kuning that was never had a voice. As the voice was supported when there was events or activations by the voice of influencers.

To manage an organisation that as build upon caring for humankind has a very impactful togetherness sense. As the fact is that there are still people following and not wanting to un-follow each channels on social media proves the needs to know more and wanting to care hence a sense of fondness towards this organisation consider them wanting to be a part of Pita Kuning.

On the understanding of how a community grow we can all agree that the intention they join in the first place was because of a similarity, a same likeness that made the same evenness. That similarity is what started them to attract  and join a community. Either way of because of the same likeness, habits, or circumstances. As usually, the most vigorous bond of them all is when they have a same circumstances like cancer.

Pita Kuning main purpose was to help children with cancer from underprivileged families. Those to have a commonality experience in cancer, a parent of cancer patient, have a passion in volunteering and children who are sick. These circumstances makes a Pita Kuning community have a strong bond. As the cause is also strong. Because it is for humanity. A direct reason without any limitation or any other reason other than helping a child with a sickness.

There were never any big campaign at that time. But we started from sharing about the new things at Pita Kuning.

Volunteering recruitment for instance and also searching for hired worker for operational staff members. There were also some introducing activities of the old and the new members at Pita Kuning. And those activities was executed together starting from 2016 onwards. Every pictures of meetings, any internal or external activities we would highlight #sayaPitaKuning.

What I need to highlight is that Pita Kuning that has been here for years and years but apparently was lacking or minimum activities in introducing themselves. It was only when chance of an event or external activities like fundraising with support from outside the organisation.

For me, we need not to wait or ask to start a conversation, we do not need to fear if ever that door will not open, we do not need to hesitate for whatever the pass might have happened, as we start by saying, “hello, I am Pita Kuning, I want to be a part of the childhood cancer countermeasures support group.” Am I right ?

“Revive” Pita Kuning is the main goal on change management stage.

Other ways in are doing activities right where there are crowd full of noise. Or when there are communities activities like events and such.

We then started to activated all social media channels we owned. Highlighting who we are, what have we done, where are we heading through stories planed by Pita Kuning editorial content. For us, what matter to be known and being highlighted since in pass those social media are active only during big activities or campaign.

Yes we had a huge following but that was because of the support of our leaders and supporter of our influencer friends during a fundraising campaign.

Whereas other than fundraising, I am sure that Pita Kuning friends on social media wants to know more. Or else they would not hold on to us, stick with us, on all our channels of social media.

On offline, we also chose places, venues, that has “a crowd” or “a buzz” worthy quality or a community based value that we can tap into. Hoping that doing the activities on those specific places could add youth supporters, refresh in new taste of social liking, grow a new sense of curiosity and be quite favourable of what we are preparing for the future of Pita Kuning.

As example, we do our activities at Loop Telkomsel, Makaham, Jakarta Selatan. A place for youth community open for all and free. Its a place where youth can hangout and utilised their community activities.

On this occasion, we use this place for our recruitment process. Hired and volunteer shortlisted are bing interviewed here.

Pita Kuning was build by young volunteers passionate to help others. That understanding will never change. And we would like to affiliate ourselves with any youth activities, togetherness, applied in all our efforts.

#SayaPitaKuning Lets always do good together.

Loop Telkomsel, May 2016

Buka Puasa Bersama Old and New Team, 15 Juni 2016

Next, The Formulation.

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

Tyas Social Project – The Trial

English version

#TyasSocialProject #4

I started through 3 months assessments

The next step after chosen is to work. But at that time I offered an arrangement that I have never done before in any form of work I have experience all this time.

I offered an arrangement without pay. Voluntarily work without pay. As I begin to learn to understand the work and the challenges I did not know if this could be the next career path for me. I questioned myself. This is not working like any other previous working situation I have done in the past. It is a unique working environment.

And so I offer to use the first 3 months probation to really get to know each other. To understand each sides and so I say, let’s asses each other. I learn about the you, the Foundation. And you guys can learn about me. Are we fit together. We might not be a good match. And so I decided not to get paid. So I dive in, heart first.

Was it a mistake or not, feel free to be the judge of it. Entering a professional work without pay. Entering a job, starting to work full and giving your heart and soul into something that put your professional integrity on the line.

I decided pro bono as I put my heart first in this situation. My heart say I wanted to help. And this is a foundation that really needs help. I was so drawn to the cause, the only thing that matter for me was, nobody was willing to do it but me. So I feel I had to do it. Nobody was available. I hoped at that time, through my experience may give learning and inspirations for those who wants to craft their career with Pita Kuning. If I had to be the 1st to jump, so be it.

Because I felt I didn’t know anything about the industry. I started by looking at the situation and the big picture of what is happening with Pita Kuning and the industry. I didn’t understand. Why, how.. In any situation or problem, however we look at it, I always start with a based on a simple question why ? Nothing is never without a cause. As evenly can and cannot is always because of one rationale and a cause.

Even though I was already chosen, honestly my process in working for this Foundation made a tremendous impact towards me professionally and as a person.

My experience with  cancer as closest to me was what had happened a year ago with one of my member of my team when I was at PSF.  She came in to the office by December, had intensive check up by February, on April it was confirmed CA, June she was not able to work anymore and then October was when she passed away. So fast.

My mother in law also passed away because of cancer. She was the mother of my husband that has passed also to cancer. She was verdict a year but made through til 4 years living. However it is, to me, childhood cancer is something very new to me.

Besides the facts, I realised that to tidy up an organisation that is already established in 8 years was not an easy task. By definitely with my background experience of course.

And so we set a timeline. October to December, 2015. And then I dive.

As I started to swim, I knew that the 1st thing we have to deal with was the process transition from old to the new. Change management. But before that, I needed to learn about this organisation as much as possible, as fast as I could.

At that time, I understood very much that planning is still a blur if you don’t understand childhood cancer and how culturally works in the world of social foundation. Especially cancer foundation, how on earth you can make a solution when you do not know what is the actual problem. If there are problems to solve.

Yes, I do have some experience in social institution with Putera Sampoerna Foundation but PSF is, nevertheless, is a corporation. It has all the professional elements on hand, resources and also a complete support of infrastructure. Not to mention around 800 staff on board. PSF although was an organisation with social purpose but it run based on corporate business settings. Very professionally.  My experience with PSF was to establish digital social media for business but that is another story I would like to take you soon.

Anyway. At that moment, this was me and me alone. Of course it was scary entering an unknown territory. But like Seth Godin said, if it scares you, it might be a good thing to try.

So I started doing the research. I came to the hospital (RSKD read Rumah Sakit Kanker Dharmais). I visited RS Kanker Dharmais as much as I could. Get aquatinted. Try to make friends. This is a process where I need as much to open my eyes, my heart and be very open minded. Man ! Did I need to be open (LOL).

Inside the organisation I met with everyone on board. Those at that time was the operational team. And so I ask to meet with them. One by one I interview them so that I get to know them better. To assess, to learn more, to understand, that was the goal.

  • Do they want to move forward
  • What was their contributions
  • Do they have any worries or ideas
  • Do they understand Pita Kuning problems
  • Do they want to make this better.

After 3 months I begin to understand more about the members and how they are proceeding each programs or activities.

I understood their concerns. How they wanted to do more but not knowing what to do how and when. Or how to help and where to start.  I begin to understand the problems they are facing in their daily activities whether at the hospitals or related directly or not with the organisation.

Getting to understand the picture of boundaries and the will of being a volunteer at Pita Kuning. Stories came from all sides and from everywhere. Not pouring out though. Not like I wanted. I had to dig in information and be creative in searching what I need as supporting info.

Other that from the community of within the organisation what becomes important as well was the perception or when received any data or concrete evidence that could share stories of Pita Kuning conditions.

Whats going inside the operational process ; like the program or servicing activities and what has happen each year, legal status, financial status, work processes, milestone and what have the organisation has achieved.

Then externally, I started to study more on what is out there in related with Pita Kuning in whatever the type of organisation are the same or not.

I started seeing from the eyes of an outsider, naturally. And started to learn, questioned, seeking more information on how people understood about this foundation.

  • Who knows about this foundation, Yayasan Pita Kuning Anak Indonesia ?
  • What do people know ?
  • What are the perception of this foundation ?
  • From Pita Kuning side as part of the ecosystem in prevention or countermeasures of cancer in Indonesia. How does other foundation do their contribution, what about the hospitals, volunteers, parents of the child with cancer and donors see in Pita Kuning ?
  • What are the challenges and boundaries Pita Kuning is facing with their other foundation friends ?

“Because from my point of view, in organisation that is driven by social cause, humanity, be it by an individual or an organisation, we should come together and help each other.” 

  • And lastly, what is also most importantly is how the needs and the supports are really being treated. How does fitting the benefits meaning towards the main purpose of all, the children with cancer and their parents?

Information and hopeful wishes for this foundation was received without filter. It was not any problem for me as the most significant value. And as I would put in compartments in my head that later on would be useful as the planning begins to start. Or, as one need at the right moment of time.

My difficulties, of course was getting those information. Heheheheh. There are times that I would really made my eyes wide open, sigh in silent, stroke my chest or forehead, or even, just walk away as calm as possible (as deep inside my heart no one knew ^_^) and decide to worry about it later. Difficult is just another word to it.

 

Emenda Brahmana,  a dear friend that I convinced to help us and then later became one of our skilled volunteer, an advisory for Pita Kuning in anything HR , see me as someone who tends to take charge and worry about it later. Hurt, wrong or bad s never a problem. Hehehehehe , she was right. Emenda is one of my best friends that came in and support us from the start of this new era.

 

 

Within 2 months from October 2015 to December 2015 I should have understood the problems and conditions of this foundation during that time. In December I have promised to submit my assessment towards this foundation and my recommendations for this foundation.

And so in the end, what have i gathered ?

On 14th December 2015 we sat down together again with Pandji Pragiwaksono,  Steny Agustaf and also Lanang Aribowo.

CommaID, Santa, 14 desember 2015.

What did i bring ? A preliminary planning.

What is a preliminary plan. It is a sequence of learnings based on some assessments that fits within the objective of this project. To show a definition picture with insights and findings, that was gathered, and needed to be discussed, explore together, expanded together with each stakeholders committee before it is executed.

In the beginning of the planning, for whatever reasons or needs, I always make sure we have a define framework of what we can envision together. It is needed to guide us, to make us stay on track and to show what’s next together with the leaders or the owners of this Foundation, in this case, they are the Councils of Pita Kuning.

This time I divided the planning into 2 parts

  1. Assessment and recommendation
  2. Change Management Plan that consist of the process of re-organisation and service plan

One of the most important understanding I need the management to agree was the importance of why be always be need to be flexible. To have the ability to  look back again to the end goal we are aiming. We have to be ready to change and adjust. As the objective is to seek the best formulation with the condition and advantage this Foundation has. It was the most important highlight that was agreed in the beginning. To be reassess and evaluated in a regular basis and have an intermediate plan. A plan in between a plan.

  1. Assessment and recommendation part.

The part of assessment is not to judge one’s state of an organisation but the goal os to give an understanding of where we are right now as an organisation. It is crucial especially for those who are inside this Foundation.

Starting from the external understanding about this Foundation. Reviewing and learning over again on this Foundation’s vision and mission as it has progressed for quite a long period of time. The management team has changed, people come people go, quite the reality check needed to happen. Again to looked over wether things are still suitable or not.

Making things into order from all aspects are the first main priorities.

The organisation structure, mapping out from what is ideal on social foundation with the services versus what is functions are actually running or not.

The services that has been done, how it does, are they as we expect them to be. Are there any rules and regulations like procedures and protocols? Are they any issues, what are the issues, how are these issues being taken care of ?

Financial status. What has happened during these years that can be describe as organisation milestone, or including fundraising.

On this opportunity, I highlighted my findings, the old, the news and the ones i recently found along the way.

From all the problems that this Foundation has, the most ultimate problem was that Pita Kuning from a community based did not level up themselves. How the operate is most likely like a community based group rather than a foundation organisation.

What does that means ? It means that Pita Kuning has been operating its services or programs with the procedures and managing guidelines just like it was as a community. Is that completely wrong ? Maybe partly yes. However we all agreed on the 8 points problems to be solved and needs to be fixed soon.

Again, there is no right or wrong. The main purpose was to trigger discussions and direct the conversation in seeking solutions or action plan. I felt it was necessary to emphasis on the findings and identify them as challenges and barriers towards the objective, the betterment of this Foundation. No matter how hard it takes for some one to understand, no matter how long it took, my job was to put that on the table.In regards to the product services planning, which was a continuance of the findings discussed the month before, I brought a market update. Just to show what is out there. This time, I suggested the discussions towards the problems through customer analysis, SWOT,  review identifications of stakeholders, and therefore the glimpse description of what the product services that could be consider, a base purpose, a promise given, a differentiation and the difficulties within a definition that could be further be studied.

What matter the most for me was how to I could describe the strategy map of Pita Kuning. How all stakeholders would activated in one organisation ecosystem.

It is crucial, when the ecosystem within an organisation cannot survive, how could PIta Kuning be a part of a larger ecosystem, which is the countermeasure part of childhood cancer in Indonesia. How could Pita Kuning give support for those children from underprivileged families. This means, the first goal to achieve is to produce the right benefit support.

Because through that, it will become a learning and a measurable base for Pita Kuning to understood where to go for the next stage. How to proceed, what  form of words or message that could create deeper meaning to a question and identify next activities needed for the next step.

We need also to agreed on what will happens within 5 years and agree on the stages in getting there.

Tracking on quality and quantity to reach that goal were also describe and agreed as well.

A competitive analysis on other organisations that were the same with us, childhood cancer in Indonesia.

After given a thorough description of what the condition of this organisation, I’d also gave a vision of what we want in the future. Where do you want to be.

But to reach there, to where do we want to be, needs, an intermediate plan.

  • A temporary recommendation.
  • A future recommendation.

Both recommendation shows what to expect and what to achieved. Also, what are the activities and how long.

Temporary recommendation.

I showed some ideas of what we need to do for internal organisation and also externally. Pita Kuning has established for 8 years, quite a long time. Of course the leaders would like to understand how long does it takes to be ready for the next step. So, it’s a negotiation. Every time.

Future recommendation. I gave 3 alternatives.

  • Alternative 1. Re-establish YPKAI.
  • Alternative 2. Closed.
  • Alternative 3. Build a new YPKAI.

Each alternatives will need to be explained and show a clear description and in eventually need to be discussed for enough and sufficient amount of time.

My goal at that time was not to get a decision as fast as I could but to get a mutual agreement on a vision and acceptance of the fact there is. Also a clear vision where we want this foundation to be.

And at that point in time, they unanimously decided to go for alternative 3, New YPKAI. And yes, based on all the findings, recommendation and the direction, they all agreed to proceed with me as Chairman /  Ketua.

Watch this video that I found :

The Lesson that has guided Ginni Rometty Career

Next, the beginning of change.

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

Tyas Social Project – The Approach

English Version

#TyasSocialProject #2

How I was approach to be the next candidate of Pita Kuning Chairman.

Let us start my journey at Pita Kuning.

Before Pita Kuning I was working for a social institution that channels CSR program for corporations. This social institution with four pillars missions, education, women empowerment, entrepreneurship and compassionate reliefs. So I was moving from a corporate settings named Putera Sampoerna Foundation to a non profit philanthropy foundation, Yayasan Pita Kuning Anak Indonesia, in short Pita Kuning.

The question that keeps coming to me was, why ? What was the reason I wanted to take this role as Chairman at Pita Kuning ?

It was a question that was often asked and given to me among friends or colleagues every time and every chance I meet with any of them. And so, every chance that I got I always shared the same answer.

“Because I can and I want”.

Meaning, I can do the job. To be honest, I know that there are so many that could do the job better than me, I’m sure. But at that moment, somehow, someway, God, the universe is giving me this job. And Pita Kuning has been searching for a new candidate for the next Chairman for more than 3 years and yet no one seems to either want it or have the right fit in terms of experience and vision.

And secondly, I want to help, and I understood myself that I have the capacity to do the work. At this point, how I see it, there are people that might have way much experience in business management or the best in the field. But the priority is not here. On the other hand there might be candidates who wants the role but does not have the background needed by this foundation during this period in time and with the much objectives needed to established.

So when that question was answered, the next was, what does it takes for me to be the next Chairman for Pita Kuning ? How was I be the next candidate for Pita Kuning next chair-person.

This is how the story goes. It started with an approach.

I was contacted by Pandji Pragiwaksono, Founder and Counsellor of Pita Kuning. He is also one of the member of c3, Community for Children with Cancer. c3 is the creator of Pita Kuning Foundation. Straight forward he asked, do you want to be one of Pita Kuning’s candidate for Chair ?

It took a minute of pause and then I asked, what do i have to do ?

Pandji then explained,

First, “just make a concept that you envision of how you currently see Pita Kuning and make a short plan of what you plan to make the changes needed for Pita Kuning.”

And then he added, “Don’t get me wrong ya mba, we are searching for the right candidate. We’ve been search for the last two years and we can no longer wait anymore now. Since you are with PSF, I figure you have some experience in social activities and then, …. “ he paused, “I know you, I know how you work, so now I’m calling to ask you if you would consider the opportunity.”

To be frank, I am actually not new to this organisation. I have seen them from the start and continue to watched them grow from a community based, as I remember back in the days when c3 (community with children) was doing fundraising activities at Mall Kelapa Gading with RAN and other artists. Together with ACER Indonesia as main sponsor. I’ve also join in on some occasions at the hospital, Rumah Sakit Kanker Dharmais and some fundraising events at a local restaurant near Kemang area. But it was a very long time ago.

I also knew most of the people. And they know me. There was also a time when I was still with multiply.com, an e-commerce platform had partner with Pita Kuning as their donation channel. Having strategic partnership role at multiply.com i had the opportunity to educate industries that was new to digital platforms and e-commerce.

To me, I always thought, I will someday take my part and have my turn to contribute towards this foundation but I didn’t know how at that time.

Personally, I myself has always loved being an advocate for those who are voiceless. I am very passionate in voicing out what I think was wrong. In any situation to be honest. You can count on me to rally up a protest or some sort. And somehow I have a huge heart for those who need help. I love to listen to people. And at home, I am the caretaker of the family.

It might be, as I am the only female in my family, therefore when my father got sick, I was the one who make sure everything was right for his need at the time. To coordinate with family members, assist his needs. And somehow my parents also was more comfortable being taken care and assisted by me.

Essentially, the main goal that Pita Kuning leaders wanted was a change. Basically, they wanted to the new chairman to make that change. As what they understood at that moment, Pita Kuning Foundation was not going anywhere. Did not move. Don’t know where to go. Their main goal was to have the opportunity to help more children with cancer around Indonesia. And beyond that, they wanted to also have that chance to grow and evolve to a position that fits with the needs and the betterment of Indonesian child with cancer, especially from underprivileged background.

For those who wants to know you are the owner of this foundation. In Indonesian, by law the owner are the Counsel (Pembina Yayasan) that are also the founders of this Foundation. They are Pandji Pragiwaksono and Steny Agustaf.

Pita Kuning was established by a group of young volunteers join together to help children with cancer from underprivileged  families.  Lanang Aribowo was the Community Leader for c3 ( Community for Children with Cancer) that later on was appointed as Chairman for the Foundation as they established in April 2007. They were the ones making sure of the role of Pita Kuning in partaking support for children with cancer from underprivileged  families.

What also matter was for this foundation to grow and evolve in the social initiative society in Indonesia and be a part for the global cause.

Aside from all the above, they wanted to have growth within the organisation. Growth to those who are in the organisation. Growth for the people who participate, give their support, their value, time and work for the organisation, in need progress and evolve to the knowledge and capabilities needed within the community of Pita Kuning. Grow together.

For this particular need the leaders of Pita Kuning keep trying to seek the right candidate who can do it. Someone to do the job. So for a while, they have been searching for someone who could do the job. Or in this condition, could start doing it.

They, the leaders of Pita Kuning have full faith that this Foundation has a huge potential to support many more child in need. Why, it is based on what they have done so far and the reputation experienced work thus far. Beyond that it was a feeling of responsibility from those who have trust and gives support within the years towards Pita Kuning that they can never ever forget.

As time goes by, the founders which are also professionals in their own way also have priorities and tremendous duties that were also growing. They needed someone that can manage all of the needs. Finding someone particular is never easy.

Someone who has the background, experience, a suitable vision and history of an organisation that at that time was almost 10 years old and can work together with them. It is true, that working in the social industry is not for everyone. Need a lot of compassion and liking to help other people in need. Someone who has the heart for tasks like these.

Within a couple of week after the phone call I submitted my plan. A few pages of general ideas that I plan I think I can do.

I didn’t remember after that hearing from them until a couple of months. At that moment I was in the middle of a change management process in the company I am with. So it was quite hectic and super busy. They called in and informed me, “I think you’re it mba, we couldn’t find anyone else that gave the vision for this foundation quite well as you did”. That was September 2015.

What was most importantly that might people have already known was I am the older sister of Pandji Pragiwaksono. In this case, I work for him.

This foundation is not mine. But I was to be hired by the Foundation, by Yayasan Pita Kuning Anak Indonesia. And this was also my first question I had asked when was reached by phone, at that time, a few months back.

For those who have known me, might know I have worked for Pandji in the early days building Pandji Pragiwaksono from someone who work for entertainment industry to someone building and crafting his brand. I am someone who help and support in building his personal brand Pandji Pragiwaksono. At that time, evenly, not many realised that I had a family relationship with hi,. Not until someone knows, and then asked, and then I replied. It is probably because we are not that similar in a glimpse and I do not feel it is necessary for me to share.  My experience working for management Pandji Pragiwaksono will also be quite the story that later one day I will share. One story at a time ya ^_^

Continue to, why me ?

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

Tyas Social Project – English Version

English Version

#TyasSocialProject #1

Why it is important for me to share my story, Tyas Social Project

First and foremost, working for a foundation with sole purpose is to help those in need is a noble cause. In honour of the trust given to me, I feel it is necessary to share this journey throughout my time serving at Pita Kuning.

As a professional I would also do not want what we have build together be forgotten or misunderstood.

And most importantly, what we build was unique and new. I believe in sharing knowledge and so through series of management journal could help be a reference.

#TyasSocialProject is essentially a strategic management documentation of my journey as Chairman for Pita Kuning Foundation named, Yayasan Pita Kuning Anak Indonesia. A narration I hope could give a new perspective for those who reads it.

I have written each step or each stages in the process of my journey.

  1. Tyas social project
  2. The Approach
  3. Why me
  4. The Trial
  5. The beginning of change
  6. The formulation
  7. The Task Force
  8. Going palliative care
  9. Time to let go

Each blog post is a continuance of each story. As you click the link provided by the end of each story.

I really hope this story would give a clear understanding of the process, my methods in strategic management and what we had to do in order to rebuild for the betterment of Pita Kuning Foundation.

Discussions are welcome !

Let’s start, The Approach.

Tyas is now Partner Consultant and Trainer on Digital and Social Media at Bangwin Consulting, Freelancer, Writer/Blogger, Podcaster. For project enquiries, tyas@bangwinconsulting.com

 Going Palliative Care

#TyasSocialProject #8

Pita Kuning going Palliative Care, through Psycho-Social based activities.

Setelah menyelesaikan 3 bulan masa uji coba dari bulan October hingga Desember 2016, juga show case layanan kami dihadapan media dan donatur pada bulan Januari 2017 kami mencoba mengulas dan mempelajarai apa yang kami miliki sekarang.

Baik informasi, pengetahuan, pelajaran, semua kejadian yang kami temukan, dan pada akhirnya dapat mengisi dan memperbaiki kerangka dasar formulasi layanan kami .

Walaupun we still have a lot to learn absolutely, tapi paling tidak ada dasar dari sebab akibat dan semua tercatat. To find solutions of problems and how to handle them, what to do, why do we need protocols and operational supporting activities also division of support will lead to so many things termasuk pengelolaan biaya operasional.

Lagi lagi knowledge management. Pentingnya sebuah metode dasar diambil dari suatu pembelajaran 5 anak terpilih kami dalam 3 bulan aktifitas pendampingan dan penyaluran bantuan dana. Harapan saya dengan berjalannya waktu akan menjadi sempurna dengan suatu tujuan yang selalu sama, perbaikan kualitas hidup anak dengan keluarganya.

Setelah pembelajaran 3 bulan tersebut, kami lebih mengerti dan memahami banyak hal terutama kanker pada anak dan keperawatannya. Dalam penanggulangan kanker sesuai dengan KPKN,

yang kami temukan dan akhirnya pahami adalah bahwa selama ini kami telah melakukan kegiatan-kegiatan yang mengusahakan pentingnya perawatan paliatif. Namun dulu namanya belum ada. Atau pemahaman tentang perawatan paliatif masih salah.

Perawatan paliatif tidak hanya diperuntukan bagi pasien kanker yang sudah lanjut tapi justru dari awal diagnosa. Perawatan paliatif tidak dapat digantikan dengan medis tapi justru saling melengkapi bahkan hingga setelah meninggal bagi keluarga pasien.

Perawatan paliatif adalah rangkaian usaha untuk mencoba mengurangi rasa sakit, mencoba membantu menerima penyakit kepada pasien dan keluarganya, mencoba memperbaiki dampak-dampak akibat penyakit yang sulit disembuhkan dengan tujuan akhir guna memperbaiki kualitas hidup anak dan keluarganya.

Meningkatkan kualitas hidup bagi anak dengan kanker dan keluarga artinya dalam mimpi besar yang kami tuju adalah produktifitas keluarga. Pengertiannya adalah, apabila ada salah satu anggota keluarga sakit atau tidak dapat memiliki kinerja yang baik selayaknya biasanya maka akan terjadi kepincangan dari keluarga tersebut. Bila banyak keluarga yang memiliki kepincangan produktifitas maka kualitas kehidupan sehari-hari atas suatu komunitas RT, RW atau seterusnya sebuah daerah akan timpang. Mencari solusi besar dengan berawal dari apa yang kami lakukan adalah sebuah mimpi besar. Kami ingin menjadi bagian dari Indonesia yang lebih baik.

Bagi kami menemukan apa yang menjadi jati diri kami sejalan dengan sejarah perjalanan kami membantu anak kanker di Indonesia juga perkembangan kebutuhan yang kami temukan melalui 3 bulan uji coba adalah sebuah jawaban yang melegakan tentunya.

Going paliatif tentunya ada banyak adjustments yang diperlukan dalam organisasi Pita Kuning. Tapi dimanapun kita bekerja, dapat dipastikan tidak akan garansi perubahan dapat dilakukan kapan saja. Bagi saya, yang penting saat saya masih menjadi pemimpin adalah tujuan awal saya disini dan tujuan organisasi ini mau kemana tidak berubah. Masih sesuai dan sejalan dengan janji dan kesepakatan saya dengan para pemimpin organisasi ini, yaitu agar organisasi ini memiliki fondasi yang kuat, menjadi lebih baik dan agar memiliki kesempatan untuk dapat lebih banyak anak Indonesia dengan yang bisa kami bantu.

Mas Pandji, Pembina Pita Kuning pernah bilang, “kita masih punya kesempatan dan banyak fleksibilitas dalam hidup kita. Tapi adik-adik yang kita bantu bersama keluarganya tidak. Selalu beri ruang untuk tumbuh dalam organisasi Pita Kuning. Semua demi adik-adik yang kami bantu.”

 

 

Bagi kami, kegiatan menuju layanan paliatif banyak yang perlu kami lakukan baik persiapan maupun kedalaman skill dan kapasitas kami.

Kami mulai bekerjasama dan mencoba berafiliasi dengan banyak pihak agar we can rise above, be strong and steady to give the best that we can do of each year’s goals.

Dalam pengelolaan layanan kami yang berbasis kerelawanan dan juga hired workers, pembiayaan yang diperlukan untuk menjadi paliatif diperlukan kegiatan pendampingan dan pembekalan yang cukup banyak.

Sebagai yayasan yang memberikan layanan paliatif banyak yang perlu kita gandeng dan edukasi agar mengerti dan mau bekerjasama. Saya berharap agar Pita Kuning dapat menjadi bagian dalam ecosystem penanggulangan kanker pada anak di Indonesia. Harapan saya agar Pita Kuning dapat selalu memberikan kerjasama yang baik dengan pihak manapun.

Kini Pita Kuning mulai bekerja sama dengan yayasan atau pihak yang sejalan dengan kami dalam hal palliative care.

Rachel House Indonesia dan Rumah Harapan Valencia adalah 2 yayasan yang memiliki kesamaan misi dengan Pita Kuning.

Rachel House Indonesia mission is to provide palliative care for children living with life-limiting conditions, allowing them to live with joy and dignity in a non-discriminatory, safe and loving environment. Rachel House membantu anak Indonesia dengan AIDS dan Kanker dari keluarga prasjehatera melalui tenaga medis dan atas rujukan dokter. Kebetulan, CEO Rachel House yang baru, mba Kartika Kurniasari adalah sahabat lama dari Putera Sampoerna Foundation.

Hand in hand dalam setiap kesempatan merawat anak dengan kanker kami bergandengan tangan, Rachel House dari sisi medis, Pita Kuning dari sisi psiko-sosial. Mulai dari assessment awal hingga masa bereavement kami mengusahakan kebutuhan paliatif terjadi bagi setiap anak dan keluarga. Setiap bulan kami memiliki tanggung jawab bersama untuk review progress guna pengelolaan yang baik dan saling mengisi kekosongan yang ada saat ini dalam penganggulangan kanker pada anak khususnya di Jabodetabek.

Bersama Rumah Harapan Valencia kami bersepakat untuk saling mengasuh anak-anak yang memiliki kanker melalui aktifitas berbasis psiko-sosial. Mba Silly mengajak Pita Kuning untuk meneruskan ke kota-kota lain di Indonesia. Semoga doa itu tercapai.

Catatan kecil : Didunia kegiatan sosial, adalah tidak mungkin untuk saling bekerja sama. Karena yang kita lakukan adalah membantu sesama. Dengan segala kelebihan pastinya ada kekurangan yang dapat ditutupi oleh pihak lain. Dan semangat kompetisi harus selalu ada. Ramya Prajna mengatakan, kompetisi di dunia sosial akan membuat pentingkatan atas kinerja sehingga industri sosial lebih hidup dan exciting. 

Dalam hal pengelolaan anak dengan kanker dengan baik, kami mulai mempelajari apa fungsi Pekerja Sosial yang sesungguhnya. Kamipun berkenalan dengan mba Nurul Eka Hermawan seorang ahli Pekerja Sosial yang dikenal dengan panggilan mba Eka. Mba Eka telah lama bekerjasama dan memberikan konsultasi bagi Department Sosial hingga yayasan dan insitutusi Internasional karena pengalamannya. Bersama dan dibawah bimbingan beliau, Pita Kuning mulai recruit pekerja sosial dengan peran sebagai case manager dari masing-masing anak dan keluarga juga sebagai jembatan hubungan dengan multidisiplin yang dibutuhkan perawatan paliatif.

Kini, Pita Kuning memiliki 3 pekerja sosial yang handal dan dedicated coordinator volunteer dan komunitas yang tetap. Dan mereka adalah millennials sejati. Hebat bukan ?

Harapan saya, setiap anak yang memiliki case management terus menerus memiliki cerita yang dapat diangkat dan dibagikan. Apakah itu menjadi bahan monitoring atau proof of concept bagi kami adalah setiap kasus selalu memiliki pencapaian psiko-sosial yang bertahap berdasarkan kebutuhan perawatan paliatif mereka.

And in the end, I truly believe the impact of what we do will make a full circle of hope for the sustainability of Pita Kuning as part of the childhood cancer countermeasures ecosystem. All for the best in doing good together.

And that is why it is time for me to let go.